Our daughter Lily Bliss was born in June 2007 with profound hearing loss. At 10 months old, she became one of the youngest in Nebraska to receive bilateral cochlear implants. This blog is the story of our hearing journey and the proof that Life really is Bliss.
"a new digital standard that bridges the understanding gap, in noise and
over distance, by wirelessly transmitting the speaker's voice directly
to the listener. Available for the education market beginning Summer
2013, Roger is designed to surpass today's Dynamic FM and equivalent
We recently formed a new group in Lincoln for Parents of Children with Hearing Loss, better known as Amplify.
Amplify's goals are to support families through their children's hearing journeys, collaborate on important issues related to hearing loss, as well as welcome new families. As a parent-driven group we share information, answer questions, focus on local issues, and brag about our children.
Our second meeting will include a parent panel of "older" kids who have cochlear implants.
For more information, contact Missy Stithem at email@example.com
The major goal of this project is to assess the clinical
utility of an image-guidance system for Cochlear Implant (CI)
programming assistance that we are currently developing. For each CI
recipient who participates in this research study, state-of-the-art
image processing methods are employed to detect, using pre- and
post-implantation CT, the position of the CI relative to the neural
stimulation region and to analyze electrode stimulation patterns. Using
the important information these spatial analysis techniques provide, we
reprogram the CI recipient’s processor. Programming parameters include
which electrodes are active, determining the relative power of each
electrode, and determining an electrode frequency allocation table.
Improved hearing performance for research participants will demonstrate
that image-guidance can lead to more effective CI programming and better
Lily's first school science fair was a huge success. Of course her project was on sound.
Titled "How loud is my school?" Lily and I measured various classrooms with my phone sound meter. Lily made predictions, documented all the measurements and then created a graph with the readings. She learned the word "vestibule" for the school's entryway, knows decibel is a measure of sound, and can now explain what the "speech banana" is all about.
While the kindergartners weren't judged on their projects, Lily knew she won when her family came for her "official" presentation, she received a ribbon and her amazing school principal (seen below) discussed the project with her.
We recently attended a fabulous community playhouse show called Pinkalicious starring Lily's good buddy Emma. In the dedications, Emma gave Lily credit for inspiring her to try out for the show because Emma only loves red, while Lily loves pink. Certainly Emma has inspired Lily to do many things like getting involved in theater.
Fortunately the theater was quiet and the actors wore microphones. Lily didn't want to miss a single word!
During swimming lessons, Lily kept knocking her Neptune waterproof headpieces off with her goggles. We pulled out the AB swim cap and like magic, the headpieces stayed on and she didn't spend most of the time readjusting them.
Lily loves the stretchy purple cap. When she saw the big AB on the side, she announced that she was an "AB girl." She also asked me how she did swimming lessons when she couldn't hear in the water. It's only been a year since she received her waterproof Neptunes, but already she has forgotten the water challenge. Thank you AB. You should see her swimming skills!
Great local lecture called "Building the Musical Muscle" by Dr Charles Limb who is a CI surgeon from John Hopkins School of Medicine and a music professor in the Peabody Conservatory of Music. His goal is to use music to help recreate perfect hearing.
Go to http://client.stretchinternet.com/client/nwuadmin.portal# and search "Limb." Then press "Watch."
One of our favorite researchers, Mary Pat Moeller of Boystown, calls Lily a fast mapper, meaning she learns something and then immediately puts it into use.
This week Lily has been trying to understand Martin Luther King, Jr and his work "to make this a free country." So when she encountered the lady in the bathroom at the Hockey game who tells you which stall to use, she declared that "this was a free country and she could use whatever bathroom stall she wanted....Right?"
She also made a flag to wave at the game, because she "knew that it would get her on TV."